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10/8/05 Toxic Mold? From:
Rob Payne <rob@everydayisprecious.com>
If you have been reading our daily updates much of this email will be old news to you. (If you don't have a password or lost yours, just email me.) Marcy tested positive and tried the IV antibiotic protocol from Texas that is helping others diagnosed with neurological disfunctions including ALS for 6 weeks. It didn't help and may have weakened her to allow a lung infection from which she is just now Recuperating. Monday 10/3 Dr. Croft called from Wisconsin. Marcy's test for Stachybotrys (black mold toxicity) came back positive and very high - Marcy was at 13, the norm for sickness is 4 or 5, people die at 18. This high a reading is usually found only when the patient is constantly exposed to very highly concentrated, visible mold in his/her environment. The doctor is very curious as to why no one else in the house is sick and asked Darcy and me (the youngest and oldest) to send him urine samples on ourselves. Dr. Croft's work shows that exposure to black mold in the environment deposits toxins in the body that accumulate over time but are not live in the body. Dr. Reid suggests (and this makes more sense to me and Marcy) that there is a fungus living in her that is throwing off toxins. Marcy has been taking an antifungal (called Vfend) since May that seems to help her feel better and may be the reason her Porphyria indicators have improved. The Vfend may be killing a fungus that is toxic to Marcy. Dr. Reid is consulting with specialists in this field to determine next steps. Dr. Reid is thinking of putting Marcy in the hospital for 5 days to administer Amphotericin, a very strong IV antifungal. Dr. Reid prescribed powdered charcoal and Metamucil to help carry toxins out of Marcy's GI tract. We are very encouraged by these findings and ready to try treatment. She started taking IGF-1 (growth hormone) this week to see if that will rebuild muscle mass and help her. Our specific prayer request for this mailing is for wisdom in finding the key to start Marcy's physical breakthrough. We are still blessed to be receiving dinners from friends and Marcy is still watching the Food Channel! Her favorite recipe that we haven't tried is Chicken and Dumplings. And we have added our current favorite restaurant - Blue Cactus - to our page for out of town friends who want to order out for us.
Marcy's Aunt Elinore died 8/13 and the family asked if Matt would like her car: a 1989 Fleetwood Cadillac.
Marcy continues to receive lots of prayer requests, but she can handle more. Just email or call me and I'll add your prayer request to Marcy's computer. We continue to thank God each and every day for your prayer and care. Love. Rob
& Marcy
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